Finally a Possible Diagnosis

It is amazing the joy that a 21 letter word can bring to one's life.

Transient Hypogammaglobulinemia of Infancy.

Yesterday was our hopefully final trip down to UCLA. We woke up yesterday morning hopeful for answers, but really not expecting anything but more blood tests ans trips down to LA. We had to wait longer for this appt then any other so far, but it was worth it when we had a DR. (who was in the fellowship program that our Dr is heading up) not a med student come in for our briefing. She sat down and described in real people language what is going on in Sammy's body. The way she explained it was you have two kinds of antibodies, one flags foreign objects and infections and the others fight what the flaggers find. Sammy's levels of the fighters are good for a child in his predicament, but his flaggers are pretty low. So the good news is that when his flaggers finally find something, his body is fairly good at attacking it. He responded great to the super charged flu shot they gave him. He still is having issues with his varicella vaccine and with this blood they took they will see how he responds to the HIB shot he just got. From giving him these vaccines that his body has earlier rejected, it is showing the Dr.'s how his immune system is working. I hope that all made sense. It does finally in my brain, but sometimes it's hard to put it in words. It doesn't mean we are completely free of the IVIG ( the transfusion therapy) but it means that we are working with a probable diagnosis. The thing that they mostly not sure on is the transient part. It means that he could outgrow it, but without time, we won't know. Thank you all for all your prayers and concerns through this time. we aren't done with our battle yet, but I feel as if we have a boost of strength to get through it more.